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2016: Tour D’Exhaustion

October 6, 2016 By Jenny Ryan 1 Comment

So to quote Mr. Cranky Fibro Girl, it’s been a helluva year.

It all started this time last year when Tigger, my baby, my heart, my soulmate, was diagnosed with renal cancer. We did chemotherapy and got four more months with him, but even though the cancer was going away the treatment was just too much for his little body, and so we let him go and my heart broke into a million billion pieces. And even though that was one of my worst nightmares, to my surprise, I survived.

The next few months after that were pretty much about going back to the “chop wood, carry water” basics of self-care, and then when I was finally able to come up for some air it was time to plan the summer.

It just so happens that both my parents, my in-laws, Mr. Cranky Fibro Girl and I, and my brother and his wife all got married in years that end in “6”. So this summer was both my parents’ and my husband’s parent’s 50th wedding anniversaries, our 20th, and my brother and sister-in-law’s 10th.  And of course we planned some major extravaganza-paloozas to celebrate, the preparations for which took up the next few months until mid-July, when the party took place.

So we took a deep breath and thought, OK, now we can relax. Which of course meant that just two weeks after the party we found out that my husband was being transferred to North Carolina. And oh, by the way, they needed him there in two months. Eight weeks (and a bit). 62 days. To pack up 22 years of life in Georgia, 17 of which we’d spent living in the only house we’d ever owned. To sell said house and buy another one. To sort through Every. Single. One. of our earthly possessions, MULTIPLE times (still not done with this one). To declutter and donate and discard and decide and delegate (again, a work in progress). To pack it all up and then go baby, go!

I’m pretty sure that I have touched every piece of paper that has ever existed since the beginning of time itself. You should all check your own filing cabinets, because it’s entirely possible that I’ve decluttered and organized all of your papers too. I had no idea it was even possible for so much paper to EXIST.

And of course, it was all our own doing. I found papers from when I was in Pre-K, which I believe was back in 1974. We had every single tax return we’d ever filed, all the way back to my husband’s first one from 1989. I had all of my students’ exams from the 2 years I was a TA in graduate school 22 years ago. We’d saved every check register we’d ever had. We had boxes and boxes of files full of papers from companies that no longer exist anymore. Why did we ever think we would need these things again?

And that was just the papers. It was like that with everything: furniture, boxes, books, tools, paint-don’t even get me started on the paint. I can’t tell you how many cans of old paint we found when cleaning out all the corners of our property, because numbers don’t go that high.

Now, in the interest of full disclosure I will tell you that we received one of the best relocation packages I’ve ever heard of. Plus, we’ve actually been working on moving back to North Carolina for the past four years. So it was good that we sort of rested up, because after four years of living in limbo with absolutely no movement we suddenly had to move at what seemed to me like superhuman speed. (My husband will tell you that he totally expected things to be that way, but even he had that glassy-eyed, overwhelmed look of someone who’d just survived a train wreck with an enormous brick wall by move-in day.)

Meanwhile, regular life continued apace.

We spent a week at the beach with my brother, sister-in-law, and two nephews.

My blog made Healthline’s Best Fibro Blogs list for the 4th time in 5 years,

The website The Mighty ran my post on what it’s really like to live with chronic pain.

My husband went to work every day.

And I still had fibromyalgia.

But here we finally are, on the other end; somehow, we did it. We’ve transported ourselves, the cats, and all our worldly goods to our new state. I’m still having periodic meltdowns as all our worldly goods are currently strewn across ALL the flat spaces in our house. And we do sometimes go for long periods without any actual cat sightings, just trace evidence of their existence. But we’re here, and yay, us.

Here’s to great new experiences and many fun stories ahead.

 

Filed Under: Uncategorized

You Can Keep Your Outrageous Salaries And Your High-Powered Careers; It’s Moments Like These That Prove That I Have The Best Job In The Whole Entire World

August 17, 2016 By Jenny Ryan 1 Comment

So the other day I was home supervising someone who was giving us a quote on work that needs to be done around the house. He was really nice, and we were getting on like a house on fire when talk turned to a recent improvement he’d made to his lifestyle.

“I just started wearing these new shoe inserts,” he said. “I’ve only had them on for a couple of days,but I can already tell a huge difference.”

“Wow-that’s great!” I told him.

“I know,” he replied. “I hurt my foot a while ago but I refuse to get surgery, because I’ve talked to too many people who did have surgery and then months later are still having problems.”

“I know what you mean,” I said. “I have a lot of lower back problems but I’m never having back surgery, for the same reasons.”

“Well let me email you the information about these inserts,” he said. “They’re pricey, but they’re working really well.” Then, our rapport well-established, he continued.

“I know a woman,” he began, “whose second toe has started growing across her big toe. So she had surgery to correct it, but it’s eight months later and she still has problems walking.”

“Ooh,” I said, grimacing. “That doesn’t sound good.”

“No,” he agreed. “But a woman at her church had the same problem, so she told my friend that she just went to the doctor and had them cut that toe right off so she could be done with it, and now she’s fine. So now my friend has scheduled surgery to have her toe amputated too.”

“Huh,” I said, as one does when confronted with an unexpected amputation anecdote.

“Yeah,” he continued, “because you know you can lose up to three toes and be OK. As long as you have your big toe and your pinky toe, you’re fine.”

As a matter of fact, I did not know. But thanks to my new friend, whom we are TOTALLY going to hire, I know now. And I did not have to put on pantyhose, drive in rush hour traffic, or sit through one single Power Point presentation to find that out.

Eat your heart out, guys.

Filed Under: CFG Knows Some Interesting People

Good Words: Check Out This Post For Some Insight On What It’s Like To Live With An Invisible Illness

August 10, 2016 By Jenny Ryan 1 Comment

At the beginning of the year I became part of a network of Chronic Illness Bloggers. In addition to opportunities to test and review products, we support each other in living with our conditions, and share with each other tips, articles, resources, and posts.

One such post is the following: “4 Women Share What It’s Like To Live With An Invisible Disease.”

“You have no idea how sick someone is on the inside when you can only see the outside. We talked to four women who are struggling with chronic (read: lifelong) illnesses that are all but invisible to the naked eye. Here, they share what it’s like to suffer from the diseases and the doubt.”

A great description of what it’s like to come up against the attitude of, “But you don’t look sick”.

 

Filed Under: CFG Goes Online

Dear My Husband: This Is Why My Phone Phobia Is Actually A GOOD Thing

August 3, 2016 By Jenny Ryan 1 Comment

Frequently when I’m out walking I pass the truck for a lawn service that’s used by a number of our neighbors. It brands its work as “realistic” which always strikes me as kind of odd, because of all the words I could think of to describe professional yard care, “realistic” is not one of them.

My first reaction is to wonder just what kind of crazy-ass unrealistic services they were asked to provide that caused them to have to specify that this is the only kind of work they offer. Maybe something like, “No, ma’am, I’m sorry, but we cannot turn your yard into a fully functioning replica of The Magic Kingdom as expressed solely through the Art Of Bonsai” ?

Then I feel kind of sad, because it makes me imagine a young, eager lawn guy or gal being told to lay down their lofty dreams of yard care glory (Bonsai? Magic Kingdom? Why not?!), and instead just settle for what is  “realistic”.

But mostly, it makes me want to call them up and ask really obnoxious questions. Such as,

“How much do you charge for “Tragically Disenchanted” lawn service?”

Or, “Can you recommend anyone who provides ‘Utterly Unfeasible’ care? What about ‘Fleetingly Quixotic’?”

Or, “Would you give me any kind of discount if I combined ‘Existentially Angsty’ with ‘Vaguely Fraught’?”

But luckily for everyone involved, my deep and abiding phobia of Talking To People On The Phone means they are safe from my trying to poke them with giant snark sticks.

It’s always nice when I can use my illness to help others.

Filed Under: CFG's General Musings

Product Review: Mo’s Dream Cream

July 13, 2016 By Jenny Ryan 2 Comments

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

I was recently given the chance to try out a new pain relieving lotion, Mo’s Dream Cream, as well as their No Mo Pain Stick, as  possible new tools for my pain management toolkit.

The first thing I noticed-and appreciated-about Mo’s is that it is not at all greasy when you apply it to your skin. It went on smoothly and easily, and absorbed quickly into my skin, and I didn’t feel like I had to immediately wash my hands afterwards like I do when I use other ointments and salves. Although another thing I really like about this lotion is that if for some reason I do have to wash my hands after I put it on, despite capsaicin being one of the ingredients, it doesn’t burn when the water touches my skin.

The next thing I noticed about Mo’s after I used it for the first time is that it didn’t intensify my pain before it started to relieve my pain. I’ve tried lotions and ointments before that have capsaicin as one of their main ingredients,  and that once I apply them then make my skin feel like it is burning and throbbing before the pain relief starts to set in. But that is definitely not the case with Mo’s.

I also like the way that Mo’s smells-and the ways it doesn’t. One thing I really dislike about the topical pain relievers you buy at the drug store is how strong and medicinal they smell, usually like camphor or mentholatum. And the odor just seems to go on and on forever, especially if you get it on your clothes. But although Mo’s does have a strong odor when you first put it on it’s composed of nice things, like wintergreen and clove essential oils.

As for pain relief, I give Mo’s high marks. Summer is always a time of high pain flares for me, and I’ve been really grateful to have this new tool in my fight against pain. For me, the lotion did not reduce my pain all the way down to a level where I could use it as a substitute for my pain meds, but it did help me start getting some quick relief as I waited for the meds to kick in. (Your mileage may very.)

If you’re interested in trying Mo’s Dream Cream for yourself its creator, Keri, has set up a promo code for readers of this blog that will never expire. If you use JENNY4U you will receive 10% off of all products and/or promotions. You can access the store here.

****Important Note: This is NOT an affiliate link. I do not receive ANY money if you decide to buy one of Mo’s products and choose to make your purchase using this link. I’m just sharing about a product that I’ve found to be quite useful in helping to manage my chronic pain.****

Filed Under: CFG Shares Some Cool Stuff

A Field Guide To Spotting First Borns

June 8, 2016 By Jenny Ryan 1 Comment

A Normal Couple:

1. Brings home one piece of cheesecake to share.

2. One person gets out a knife,  eyeballs the dessert, and cuts it into two roughly equal pieces.

3. Each person eats their half.

A First Born Couple:

1. Brings home one piece of cheesecake to share.

2. One partner pulls out the kitchen scale.

3. The other partner gets down a dessert plate, places it on the scale, and then zeroes it all out so that the weight of the plate will not factor into the total weight of the cheesecake to be sliced.

4. First partner carefully removes cheesecake from original container and places it on the zeroed-out scale.

5. Second partner surveys entire knife collection and then selects the best tool for the job based on handle, weight, and ratio of blade size to size of the item to be cut.

6. Brief pause while Google is consulted due to differing opinions on choice of knife.

7. With surgical precision the partner with the engineering degree makes the first cut, slowly drawing the two halves apart and placing them on separate plates.

8. Each partner weighs their piece to make sure they are as equal in weight as is humanly possible.

9. Then, and only then, can dessert be consumed.

********

Bonus Tip: If when addressing correspondence to you and your husband your mother is scrupulously careful to alternate the position of your names (e.g., your name first on the outside of the envelope, your husband’s name first in the letter’s salutation), you can be sure that both you, he, and she are all first borns.

 

 

Filed Under: CFG On Love And Marriage

Well Alrighty Then-Sign Me Up!

May 25, 2016 By Jenny Ryan 2 Comments

2016-05-25_04-33-52

Filed Under: CFG Says, What?!

Product Review: PillSuite

May 24, 2016 By Jenny Ryan 3 Comments

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

So I was recently given the opportunity to try out a product called PillSuite, which was exciting for two reasons: first, I LOVE gadgets, and second, I can always use something to help me better organize my medications.

This is how my managing my meds used to look:

pillsuite1

I carted this bag with me wherever I went, and pulled out each pill bottle twice a day to take my meds. I’d tried those big plastic blocks with the flip lids and little compartments for each day’s pills, but that felt just as cumbersome to me, and if I took it on a trip I’d have to put it into a big ziploc bag because some of the flaps would pop open and the pills would all spill out.

When I opened the PillSuite box, this is what I saw:

pillsuite2

The orange carousel opens up to reveal seven compartments, one for each day’s collection of medications. I have to fill this twice myself, since I take one set of meds in the morning, and another one in the afternoon.

pillsuite3

Once you fill up all the compartments and put the top back on,

pillsuite4

you use the spout to pour each compartment’s pills into individual plastic bags.

pillsuite5

pillsuite6

Finally, you insert the bag of pills into the sealer machine

pillsuite7

 

And you end up with 7 (or 14, in my case) small, sealed bags to deal with, instead of a Big Bag-O-Pills.

pillsuite8

 

I LOVE my PillSuite. The only issues I’ve had with it are that the bags are thin and a little flimsy, so it can be hard to get them to stay on the spout when you’re pouring the pills in, and that I have to make sure and double check the seal on each bag to make sure it’s entirely closed, because I have occasionally had some spills.

So if you too are looking for a better way to manage your medications, I can definitely recommend PillSuite as a product that you should check out.

Filed Under: CFG Shares Some Cool Stuff

In Honor Of National Fibromaylgia Awareness Day

May 12, 2016 By Jenny Ryan Leave a Comment

I wish I had it in me right now to write a moving, inspirational, and deeply insightful post to mark today. Unfortunately, I’ve spent a significant portion of the past week lying on the floor, because sitting upright in a chair is too exhausting. So instead, I’ll post some links to various posts I’ve written over the past few years that are my attempts to help explain what it’s like to have fibromyalgia.

Hitting Me Right Between The Eyes

It’s Definitely A Sign That You Had A Really Bad Night

“Why Pain-Free Days Aren’t Really All That Free”

Cranky Fibro Girl And The Puzzle

This Is What Having Fibromyalgia Feels Like

The Marathon

Dear Lyrica Commercial: As A Real-Life Fibromyalgia Patient And Not Just An Actor Playing One On TV, I Have To Say That Your Commercials Are EXTREMELEY Misleading

Aware

Filed Under: CFG And The Effects Of Fibromyalgia

Good Words

April 22, 2016 By Jenny Ryan Leave a Comment

Allow

There is no controlling life.

Try corralling a lightning bolt,

containing a tornado.  Dam a

stream and it will create a new

channel.  Resist, and the tide

will sweep you off your feet.

Allow, and grace will carry

you to higher ground.  The only

safety lies in letting it all in –

the wild and the weak; fear,

fantasies, failures and success.

When loss rips off the doors of

the heart, or sadness veils your

vision with despair, practice

becomes simply bearing the truth.

In the choice to let go of your

known way of being, the whole

world is revealed to your new eyes.

-Danna Faulds

Filed Under: CFG Loves Things Wordy

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