Cranky Fibro Girl

Harnessing the healing power of snark

  • Home
  • Resources
  • Blog
  • You Know You Have Fibro If…
  • Cranky Fibro Girl Manifesto
  • Contact
  • About

Wherein I Must Once Again Unfortunately Revisit The Subject Of People And Their Dumbassery

May 22, 2009 By Jenny Ryan 9 Comments

Although first I would like to say thank you to anyone who has continued to visit me here, despite the fact that I haven’t posted anything for a week and a half.

The good news is that the blog is FINALLY UPDATED! And it is so pretty! And clean! And did I mention the prettiness?

The bad news is that after 6 days of editing 550 posts, and then presenting my husband with a list of “back end” tasks which ended up taking him 7 hours last Sunday, neither he nor I could even think about my blog without wanting to punch something.

But happily that time has passed, and I am now able to continue my discussion of People Who Have Obviously Never Experienced Pain So Debilitating That They Have Actively Wished For Death, And Who Therefore Act Like A Dumb Ass Around Those Of Us Who Have.

So last week I was listening to a radio show on the internet where the hosts were discussing strategies we could use to help us follow through on the work of our dreams, once we had figured out what our dreams actually were.

A man called in to the show to discuss how he had successfully written and self-published a book. He said he set a deadline for when he wanted the book to be available for purchase, and then he just worked backward from that point, planning out and then completing each task until the entire thing was finished.

He didn’t say anything I hadn’t heard before, but what irritated me was the tone in which he said it, which was somewhere along the lines of, “Uh, DUH! How can you NOT know this?!”

You know the kind of person I’m talking about.

[Read more…] about Wherein I Must Once Again Unfortunately Revisit The Subject Of People And Their Dumbassery

Filed Under: Grin And Bear It, It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick, Sometimes People Are Stupid Tagged With: living with chronic pain and chronic illness

Life

May 7, 2009 By Jenny Ryan Leave a Comment

Having fibromyalgia, which needs to be treated with Lyrica, which drastically reduces your pain (AWESOME!), but which also causes quite a bit of swelling (LESS AWESOME), which causes quite a bit of pain (NOT AT ALL AWESOME), which necessitates fucking with tweaking the Lyrica, which could take you all the way back to square one, which truly makes you question the idea that there is any kind of benevolent force in charge of the universe AT ALL.

There seriously needs to be some kind of Universe Official whose nuts you can punch on days like these.

Filed Under: It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick, These Are The Days Of My Life Tagged With: chronic-illness, fibromyalgia

I Can Haz More Medical Problemz?

March 25, 2009 By Jenny Ryan 3 Comments

Image courtesy of FreeDigitalPhotos.net.

When my brother and I were growing up, my mom used to joke that he ought to have his own Frequent User Pass to the emergency room, since she ended up having to take him there so often. That’s how I’m feeling right now about every single one of my personal health care professionals, because I have to spend so much time in their offices these days. It’s a good thing I only have 2 tutoring clients right now, because managing my health care situation is a freaking full time job.

Fortunately, I have found really good doctors in all of the areas in which I need assistance. Unfortunately, none of them are near me, and none of them are near each other, either. So if you imagine Georgia as the entire Southeastern United States, then, say, on Monday, I will be seeing a doctor in Florida, on Tuesday I will have to go over to Tennessee, and on Thursday I will need to be up in North Carolina. If I could figure out how to get some kind of “frequent driver miles” deal, like people have with their credit cards and airline miles, we’d probably have enough points for round trip tickets to Hawaii by now. Not that we could actually go, since I can’t really travel much farther than my own living room right now, ON ACCOUNT OF ALL MY FUCKING HEALTH ISSUES!! It’s a vicious cycle.

So anyway, I had to travel to Metaphorical Alabama yesterday, since my left knee apparently thought it would be a good idea to spend the past week turning itself into a liquid pool of raging fire, and my pain management strategy of stabbing it repeatedly with a very sharp knife really wasn’t working all that well for me. So I went in to be seen for my knee, and I came out with…a diagnosis of high blood pressure. Which was weird, but kind of a relief, since I’d spoken with my doctor the night before and he’d mentioned the possibility of “aspirating the knee”, which I made the mistake of googling, and which turns out to mean something like, “sucking out the offending fluids with a syringe.” Which is attached to a needle. Which HURTS. But taking a pill? Hell, yeah, that’s easy. I’ve actually done that once, or twice, or eleventy thousand times before.

The high blood pressure thing wasn’t totally a surprise-it’s been slowly creeping up on me over the past couple of years, and there’s a long history of it in my family. But it still sucks. And after I recovered from the giddiness induced by Not Needing To Be Stuck In The Knee With A Giant Needle, I started contemplating how this new medical condition just provided further evidence of my epic failure as a human being. Because that’s what I do. Because deep, deep down inside I know that if I could just figure out how to “be better“, then none of this stuff would have happened to me. Because, as we all know, fibromyalgia, and sleep apnea, and high blood pressure are all questions of morality, and are personal judgments on your particular worthiness as a human being. And a heaping scoop of inner-directed loathing, topped with some intense self-hatred makes everything better.

It doesn’t help that I weigh more than is healthy for me, and so it’s easy for me to go off into the magical thinking that says that, if I could’ve just figured out how to stay thin, then I wouldn’t have any health problems. So I was hanging out in this story yesterday when, much like Saul of Tarsus, I was knocked to the ground by The Blinding Light Of The Universe Laughing Its Ass Off At Me. Because, HELLO, HAD I FORGOTTEN WHO I WAS?! I have always had health problems, since the moment of my birth. They started with a belly button that refused to heal and eight weeks of colic, and have continued apace right up until this very moment. As a matter of fact, I believe I spent all of grades 1-4 in my pediatrician’s office, being treated for one, unending ear infection.

Which doesn’t make this any easier. But it did at least snap me out of longing for the Imaginary Good Old Days of never being sick, and allow me to start pondering what’s next: finding out if there possibly is such as thing as low-salt salt.

Filed Under: It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick, These Are The Days Of My Life Tagged With: chronic-illness, high blood pressure

Why I Love My Husband So Much: Reason 4

February 27, 2009 By Jenny Ryan 2 Comments

Image courtesy of Free Foto.

He is quite the Renaissance Man.

He can receive the following text from me:

“If I’m asking myself, ‘How much pain should I be able to tolerate before I take any meds?’, is that a sign that I should be taking some meds?

Also: BUNNIES!”

and be just as happy to hear the one (that I am asking for help in taking care of myself) as he is to hear the other (signs of the return of spring).

Filed Under: It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick, The Perfect Blend Tagged With: chronic pain, marriage

Planted Firmly In The Second Stage Of Grief

November 21, 2008 By Jenny Ryan 7 Comments

So after hanging out in The Land Of Denial from approximately October of 2007 until last Monday, I have now landed squarely in the Land Of Being Really, Really Pissed Off About Being Sick. I’m trying very hard not to inflict this on anyone else, but sometimes it is EX-TRE-ME-LY difficult. Because if I thought I had problems with people back when I worked in retail, they were nothing-NOTHING!!-compared to what I’m dealing with now. Which can pretty much be described as People Finding Out That I’m Sick, And Then Acting Like A Dumb Ass.

For example:

1. The day I received my diagnosis of fibromyalgia I posted it as my Facebook status, to update everyone who was sending me good vibes that day. I was SO relieved to finally have this sucker identified, and so, SOOOO happy to finally have my first significant pain relief in over a year. So I was pretty much reveling in the little things like, oh, once again being able to walk and use all of my limbs, and just about everyone I talked to understood what a big deal this was, and rejoiced with me. Except for the person who sent me the following email:

“Gluten intolerance’s most common misdiagnosis is fibromyalgia. We have a friend who was diagnosed with it for 10 years – miserable, on lots of meds for pain, etc…she went off of gluten and she’s fine – off of all of her meds.”

Honestly, when I read this email, I became so enraged that I started to shake, and I lost my ability to speak for a few minutes. Not because of anything related to the idea of going gluten-free. Obviously that in itself is pretty innocuous. Instead, it was how invalidated and dishonored this person’s response made me feel.

After all the agonizing pain, and suffering, and not knowing, and being misdiagnosed, and trying things that didn’t help me at ALL, and being afraid that this was what the rest of my life was going to be, I finally found someone who could correctly identify what was happening to me, and who gave me hope that there are lots of things I can do to get relief and to continue to have a really good quality life, and most importantly, SOMEONE WHO STOPPED THE PAIN. It was a Divine Gift, and I was so, SO grateful for it.

And then to have this person completely disregard and dismiss all my experiences of the past year, without knowing anything about me, what I’ve been through, what my doctor and I have talked about, OR ANYTHING ABOUT THE PRACTICE OF MEDICINE IN GENERAL, OR THE DIAGNOSIS OF FIBRO IN PARTICULAR, and then invalidate the only thing that’s helped me feel better or get relief from pain in the past year and tell me that IT’S WRONG AND I SHOULD STOP IT, BECAUSE THEY HAVE THE ACTUAL, CORRECT ANSWER FOR ME, made me want to rip out their tongue with my bare hands, and then feed it back to them through their eye socket. Obviously I didn’t do that. But I did think about it. A Lot.

And speaking of people who wanted to take things away from me, then there was this:

2. As I mentioned in a previous post, I had to go to the dentist earlier this week. I shared the details of my treatment plan with him, since he is one of my health care providers, and I assumed he needed to know what was going on with me.

I explained that I had been put on Lyrica, and that it was providing quick, amazing results in the area of pain relief, and that I loved it deeply with my whole heart, and wanted to marry it and have its babies (and I don’t even WANT children.)

And his response was, (after incorrectly identifying Lyrica as an anti-depressant-which it’s not; it’s an anti-convulsant-and lumping it in with other drugs that affect Serotonin levels-which it doesn’t; it has nothing to do with Serotonin) to ask me, “So, is there any hope that you’ll be able to wean yourself off of it in a little while?”

And I looked at this man and thought, “WHY IN THE NAME OF GOD WOULD I EVER WANT TO DO THAT?! I AM ALMOST COMPLETELY FREE OF PAIN FOR THE FIRST TIME IN A YEAR. WHY DO YOU WANT TO TAKE THAT AWAY FROM ME? WHY DO YOU WANT ME TO SUFFER AGAIN, STUPID PERSON WHO IS SUPPOSED TO HELP ME CARE FOR MY HEALTH?!”

Dumb ass.

And then, speaking of babies, I must also share this email I received shortly after the doctor pronounced his diagnosis:

3. “What kind of treatment plan have they suggested? Also, I’ve never asked but do you have any children? I have a friend who suffered from fibromyalgia and a chiropractor suggested that pregnancy could potentially “cure” it or minimize the painful effect.. It worked for her.”

I don’t even know what to say to this, because there are So! Many! things wrong with it that they all try and come out at the same time, and then my brain explodes into a million, billion pieces, and then I have to go lie down on the couch and watch my husband slaughter super mutants on Fallout 3 in order to recover.

Here endeth the first lesson on DumbAssery.
Let us go forth and irritate the crap out of others no more.

Filed Under: Grin And Bear It, It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick, Sometimes People Are Stupid Tagged With: living with chronic pain and chronic illness

Ladies And Gentlemen, We Have A Diagnosis

November 10, 2008 By Jenny Ryan 10 Comments

So the bad news is that it seems I’ve been misdiagnosed for, oh, conservatively speaking, at least the past year.

The good news is that I went to a specialist and am now getting treated for what I actually have.

The bad news is that I have fibromyalgia, which frankly, SUCKS GIANT DONKEY BALLS.

The good news is that if you’re going to get fibro, now is apparently the time to do so, since there are a lot more treatments, including some new medications that allow you to not spend each and every moment in excruciating pain, which ironically makes this the first time I’ve ever been part of a current, leading-edge trend. THANKS, UNIVERSE. HA, HA, THAT’S A GOOD ONE! (Grrr.)

It’s an awful lot to take in, so any prayers/good thoughts/healing energy/holding in the light/chanting/drumming/nakedness/burning stuff, or any application of your particular method of invoking the presence of The Divine on my behalf would be much appreciated.

Filed Under: Grin And Bear It, It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick Tagged With: getting diagnosed with fibromyalgia

Like-Minded Souls

October 27, 2008 By Jenny Ryan 2 Comments

I went to a rheumatologist this morning to get some specialized help with all my health stuff, and not surprisingly, they had to draw some blood. This process never goes well for me, because if I am even in the same building as someone who is thinking about picking up a needle and using it on me, all blood flow immediately ceases, and my veins physically depart my body.

I made sure to explain this-in-detail-to the guy who was about to stick me, hoping that he would pick up on my extremely-loud-though-unspoken message of, “Please don’t hurt me!”

He listened sympathetically to my tales of woe, slipped the needle in so easily that I didn’t even feel it, and then replied,

“Yeah, well, some people suck.”

I LOVE him!

Filed Under: Grin And Bear It, People Say The Funniest Things, Playing Well With Others, Sometimes I Get Sick Tagged With: living with chronic pain and chronic illness

Just Because You’re Paranoid, That Doesn’t Mean They’re Not After You

October 25, 2008 By Jenny Ryan 4 Comments

I’m fast arriving at the conclusion that my husband and I need to start communicating with each other in some kind of secret code, because I’m pretty sure that all of our conversations are being tapped. Not by another person, but by all the appliances, bath fixtures, and automobiles that surround us.

Because last week my husband had to go on a business trip, again, and as soon as he was out the door and on the plane, something broke in our house-again.

I don’t understand how they are able to time these things so perfectly. I can only imagine that, late at night when all the mammals are asleep, they call together their little coven of destruction for a planning meeting.

“Hey,” hisses the ice maker, pretending to form cubes, “he’s leaving again tomorrow. What’re we gonna do this time?”

“Hm,” muses my laptop. “How about mysterious brown goo seeping out of the washing machine?”

“No, we did that one already.”

“I know!” yells the kitchen faucet triumphantly. “How about a inexplicable loss of power affecting only the back 3 rooms of the house, leaving her uncertain as to whether or not everything is fine, or whether or not the house is only minutes away from exploding in a Giant Fireball Of Death?”

“Nope, did that one too.”

“Tiny lizard head popping up under her ottoman at the moment his plane lands in another state?”

“Already done.”

“Exploding transmission as she’s hurtling down I-85?”

“Well we tried to do that,” says the ice maker, shooting a dark glance in the direction of the garage, “but when it happened he was with her and he took care of everything. So, no more car plans.”

(The Explorer hangs its head in shame.)

And on and on it goes.

But this time they crossed the line, because this time, THIS TIME, they went after my bathtub.

And of all the appliances and fixtures we have here in our house, the bathtub is the one thing that has helped keep me sane and brought me some measure of relief during this season of excruciating pain. I REALLY NEED MY TUB.

That is why, when the mysterious hissing noise began, I was unable to deal with the possibility that something was wrong with my beloved bathtub. So instead I fell back on my Number One Rule For Dealing With Life:

“When in doubt ignore it, because it’s probably not as bad as you think it is; plus, it will probably go away on its own.”

Incidentally, this is the reason I’m no longer allowed to be by myself, alone and unsupervised, when my husband goes out of town on business. Which means we have a lot of conversations like this:

My husband: “So my mom will be here tomorrow afternoon, and will stay with you until I get back on Friday.”

Me: “You know, I was going to tell you that I really don’t need your mom to come down after all, because I was sure that I was a lot better.”

My husband: “Oh, really?”

Me: “Yeah. But then I was too tired to put the ice packs back in the freezer all by myself, and so I’ve spent all afternoon waiting for you to get home so that I could get some new ice for my joints. So then I thought, maybe I won’t tell him that after all.”

My husband (exhibiting an HEROIC ability to control his sarcasm): “Good thought.”

It’s just that I have such a hard time being in so much pain so often, and so lots of things (such as The Truth) get a little garbled between the time I experience them and the time I express them to other people.

Some people refer to this as, “being a lying sack of shit,” which is often the case. But I don’t think that’s the only explanation. I think that part of the problem is also that, somewhere along the line, my measure of what is reasonable and unreasonable got a little skewed, and is not actually scaled for humans, but rather matches up to some other kind of creature, like a woolly mammoth, perhaps, or a velociraptor.

This is the only thing I can think of that could possibly explain why I endured severe diarrhea and dehydration FOR TWELVE DAYS last year before seeking medical attention, because, to my mind, it was “probably not a big deal.” (“Well, stegosaurus wouldn’t go to the doctor for something silly like this.”)

Happily, I found a plumber who made emergency house calls, much to the chagrin of all my appliances (“T Rex wouldn’t have called a plumber for something as silly as this!”), my husband was able to fix the water damage, and we’re down to about 4% remaining musty smell. Which has freed up tons more time for me to grossly overestimate my level of wellness, and concoct completely insane plans for how to spend my days (“Hey, you know what sounds like fun? Triathlons!”).

But first, I could really use a nice, hot bath.

Filed Under: Grin And Bear It, Sometimes I Get Sick Tagged With: living with chronic pain and chronic illness

Dear Doctor On Call At My Physician’s Office Tonight

October 14, 2008 By Jenny Ryan 3 Comments

I realize that I should’ve been a much better patient.

I should not have let the pain get so bad that I was forced to call the doctor’s office after hours and request a stronger prescription.

However.

In the future, if you should receive a similar call, perhaps you could remember that if someone informs you that they can no longer walk or raise their arms, they are in TREMENDOUS pain.

Which makes them feel really vulnerable.

So perhaps that is not the best time to mention that, in your considered opinion (based SOLELY on chatting with them for approximately 90 seconds on a tenuous cell phone connection, where only one of you can claim English as your first language) “they are probably suffering from lupus.”

Filed Under: Grin And Bear It, Sometimes I Get Sick Tagged With: living with chronic pain and chronic illness

What Not To Say: Part 4

August 21, 2008 By Jenny Ryan 5 Comments

6. Projecting your personal “stuff” onto us.

Lordy Day, did I experience this when I made the mistake of telling anyone who was not me or my doctor that I was taking steroids to help control the agonizing, incapacitating arthritis pain that I was experiencing back in the spring.

I thought I was saying, “Yeah, my doctor gave me some Prednisone to help with the pain,” but apparently what everyone heard was, “I’m currently ingesting a special tonic composed of the leftover radioactive material from the Chernobyl disaster, laced with some accompanying drops of the dark black essence at the pit of Satan’s soul.”

Unfortunately, no one would ever just come out and say, “Hey, I’m concerned that you’re on steroids.” Instead I was regaled with many, many stories involving friends, family members, or someone they’d heard about while standing in line to pay for gas who contracted some kind of illness, stupidly took steroids, then found out that “that was the worst thing they possibly could’ve done,” and now they are crippled/maimed/disease-ridden/comatose/an invalid/dead FOREVER.

The implications in all of these stories were, of course, that a)I was an ignorant, reckless, idiot, who just leaped onto the first treatment plan that caught my attention without actually knowing what I was getting into, b)that I was selfish and inconsiderate for doing something that was clearly upsetting the person I was talking to, c)and that if I were a “good” friend/family member/whatever, I would immediately cease said upsetting action, and instead choose a treatment plan that they were comfortable with. You know, because my illness is all about everyone else.

Give me a fucking break.

It’s not like I just woke up one day and said, “Hm, what can I do that will recklessly endanger my health, as well as freak out the maximum number of people possible? I know-I’ll start using steroids!” I took that medication because I needed it. When it’s your turn to experience such excruciating pain that you can neither move your arms, stand, walk, or even get out of bed, then you can treat it however you want to. But I’m the one who had to live through all this stuff, and this was my choice. So BACK OFF!

Nobody but the sick person knows what they are going through, or what they need to survive. Telling horrifying stories to someone who is barely able to function as it is is just mean, especially when you’re doing it to “punish” them for upsetting you with their choices. Either come out and say what is bothering you, OR KEEP YOUR BIG MOUTH SHUT!

Filed Under: Grin And Bear It, It's Hard To Be Funny When Dealing With Chronic Pain, Sometimes I Get Sick Tagged With: living with chronic pain and chronic illness

  • « Go to Previous Page
  • Go to page 1
  • Go to page 2
  • Go to page 3
  • Go to page 4
  • Interim pages omitted …
  • Go to page 6
  • Go to Next Page »

Cranky Fibro Girl News And Updates

* indicates required
Check here to get blog posts by email as well.
Email Format
fibromyalgia best blogs badge
fibromyalgia best blogs badge
Healthline
16 Best Fibromyalgia Blogs of 2014
Healthline
fibromyalgia blogs

Pages

  • Contact
  • Home
  • My Podcasts
  • Resources
  • Blog
  • You Know You Have Fibro If…
  • Cranky Fibro Girl Manifesto
  • My Story
  • About
  • Contact

Archives

Categories

Meta

  • Log in
  • Entries feed
  • Comments feed
  • WordPress.org

Logo designed by Calyx Design

Copyright © 2025 Jenny Dinsmore Ryan